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    "title" : "#NIHDigital Summit: Optimizing Digital to Reach Patients, Scientists, Clinicians and the Public |Digital.gov",
    "description": "#NIHDigital Summit: Optimizing Digital to Reach Patients, Scientists, Clinicians and the Public",
    "home_page_url" : "/preview/gsa/digitalgov.gov/bc-archive-content-3/","feed_url" : "/preview/gsa/digitalgov.gov/bc-archive-content-3/2015/10/26/nihdigital-summit-optimizing-digital-to-reach-patients-scientists-clinicians-and-the-public/index.json","item" : [
    {"title" :"#NIHDigital Summit: Optimizing Digital to Reach Patients, Scientists, Clinicians and the Public","summary" : "On October 19th, NIH brought together nearly 1,500 digital and health experts in person and via webcast. The event featured two keynote speakers and panels that showcased the unique perspectives of patients and caregivers, health","date" : "2015-10-26T13:00:14-04:00","date_modified" : "2025-01-27T19:42:55-05:00","authors" : {"alison-lemon" : "Alison Lemon"},"topics" : {
        
            "product-and-project-management" : "Product and project management",
            "social-media" : "Social media"
            },"branch" : "bc-archive-content-3",
      "filename" :"2015-10-26-nihdigital-summit-optimizing-digital-to-reach-patients-scientists-clinicians-and-the-public.md",
      
      "filepath" :"news/2015/10/2015-10-26-nihdigital-summit-optimizing-digital-to-reach-patients-scientists-clinicians-and-the-public.md",
      "filepathURL" :"https://github.com/GSA/digitalgov.gov/blob/bc-archive-content-3/content/news/2015/10/2015-10-26-nihdigital-summit-optimizing-digital-to-reach-patients-scientists-clinicians-and-the-public.md",
      "editpathURL" :"https://github.com/GSA/digitalgov.gov/edit/bc-archive-content-3/content/news/2015/10/2015-10-26-nihdigital-summit-optimizing-digital-to-reach-patients-scientists-clinicians-and-the-public.md","slug" : "nihdigital-summit-optimizing-digital-to-reach-patients-scientists-clinicians-and-the-public","url" : "/preview/gsa/digitalgov.gov/bc-archive-content-3/2015/10/26/nihdigital-summit-optimizing-digital-to-reach-patients-scientists-clinicians-and-the-public/","content" :"\u003cp\u003eOn October 19th, NIH brought together nearly 1,500 digital and health experts in person and via \u003ca href=\"http://www.nih.gov/news/events/digital-summit.htm\"\u003ewebcast\u003c/a\u003e. The event featured two keynote speakers and panels that showcased the unique perspectives of patients and caregivers, health communicators, health professionals and scientists.\u003c/p\u003e\n\u003cdiv class=\"image\"\u003e\n  \u003cimg\n    src=\"https://s3.amazonaws.com/digitalgov/_legacy-img/2015/10/600-x-400-NIH-Digital-Summit-Keynote-speaker-Susannah-Fox-Chief-Technology-Officer-of-the-US-Department-of-Health-and-Human-Services-HHS-IMG_1724.jpg\"\n    alt=\"Keynote speaker, Susannah Fox, Chief Technology Officer of the U.S. Department of Health and Human Services (HHS)\"/\u003e\u003c/div\u003e\n\n\n\u003cp\u003e\u003ca href=\"https://storify.com/StuckonSW/opening-plenary-of-nihdigital-nih-digital-summit-b\"\u003eSusannah Fox\u003c/a\u003e, Chief Technology Officer of the \u003ca href=\"http://www.hhs.gov/\"\u003eU.S. Department of Health and Human Services\u003c/a\u003e (HHS), said we have entered the “third digital era.” First we connected documents, then we connected people. Now in the third era, we can unleash empathy, harness health data and allow everyone access to it, Fox said.\u003c/p\u003e\n\u003cblockquote class=\"twitter-tweet\"\u003e\u003cp lang=\"en\" dir=\"ltr\"\u003e\u0026quot;How might we connect the edges of science to the majority?\u0026quot; - \u003ca href=\"https://twitter.com/SusannahFox?ref_src=twsrc%5Etfw\"\u003e@SusannahFox\u003c/a\u003e \u003ca href=\"https://twitter.com/hashtag/nihdigital?src=hash\u0026amp;ref_src=twsrc%5Etfw\"\u003e#nihdigital\u003c/a\u003e\u003c/p\u003e\u0026mdash; NIH NCCIH (@NIH_NCCIH) \u003ca href=\"https://twitter.com/NIH_NCCIH/status/656096591133151232?ref_src=twsrc%5Etfw\"\u003eOctober 19, 2015\u003c/a\u003e\u003c/blockquote\u003e\n\u003cscript async src=\"https://platform.twitter.com/widgets.js\" charset=\"utf-8\"\u003e\u003c/script\u003e\n\n\n\u003cdiv class=\"image\"\u003e\n  \u003cimg\n    src=\"https://s3.amazonaws.com/digitalgov/_legacy-img/2015/10/600-x-400-NIH-Digital-Summit-Dr-Richard-Besser-Chief-Health-and-Medical-Editor-of-ABC-News-IMGs_1865-2019.jpg\"\n    alt=\"Richard Besser, Chief Health and Medical Editor, of ABC News\"/\u003e\u003c/div\u003e\n\n\n\u003cp\u003e\u003ca href=\"https://storify.com/StuckonSW/nihdigital-keynote-by-drrichardbesser\"\u003eRichard Besser\u003c/a\u003e, Chief Health and Medical Editor, of ABC News, has learned a few lessons as host of the popular #abcDrBchat. He was surprised by how rude people can be on social media, especially when it comes to scary health issues. He advised to look for the essence of truth in rude questions, and to address the fear with facts.\u003c/p\u003e\n\u003cblockquote class=\"twitter-tweet\"\u003e\u003cp lang=\"en\" dir=\"ltr\"\u003e\u003ca href=\"https://twitter.com/DrRichardBesser?ref_src=twsrc%5Etfw\"\u003e@DrRichardBesser\u003c/a\u003e on rude posts- everyone wants to feel heard. Addressing that fundamental need can break barriers \u003ca href=\"https://twitter.com/hashtag/nihdigital?src=hash\u0026amp;ref_src=twsrc%5Etfw\"\u003e#nihdigital\u003c/a\u003e\u003c/p\u003e\u0026mdash; Anna Mencarelli (@amvmencarelli) \u003ca href=\"https://twitter.com/amvmencarelli/status/656167383992836096?ref_src=twsrc%5Etfw\"\u003eOctober 19, 2015\u003c/a\u003e\u003c/blockquote\u003e\n\u003cscript async src=\"https://platform.twitter.com/widgets.js\" charset=\"utf-8\"\u003e\u003c/script\u003e\n\n\n\u003ch2 id=\"the-patient-and-caregiver-perspective-managing-health-conditions-using-digital-tools-and-social-media\"\u003eThe Patient and Caregiver Perspective: Managing Health Conditions Using Digital Tools and Social Media\u003c/h2\u003e\n\u003cp\u003ePatient activists Anna McCollister-Slipp and Guy Anthony \u003ca href=\"https://storify.com/StuckonSW/nihdigital-patient-parent-panel\"\u003ediscussed their first-hand experiences using digital\u003c/a\u003e. Talking openly about health conditions has reduced stigma and has enabled connections with other patients.\u003c/p\u003e\n\u003cblockquote class=\"twitter-tweet\"\u003e\u003cp lang=\"en\" dir=\"ltr\"\u003e\u0026quot;I changed \u0026#39;resources\u0026#39; to \u0026#39;wesources\u0026#39; because these are our shared tools.\u0026quot; -\u003ca href=\"https://twitter.com/IAMGUYANTHONY?ref_src=twsrc%5Etfw\"\u003e@IAMGUYANTHONY\u003c/a\u003e \u003ca href=\"https://twitter.com/hashtag/NIHDigital?src=hash\u0026amp;ref_src=twsrc%5Etfw\"\u003e#NIHDigital\u003c/a\u003e\u003c/p\u003e\u0026mdash; Westat (@westat) \u003ca href=\"https://twitter.com/westat/status/656106572331032577?ref_src=twsrc%5Etfw\"\u003eOctober 19, 2015\u003c/a\u003e\u003c/blockquote\u003e\n\u003cscript async src=\"https://platform.twitter.com/widgets.js\" charset=\"utf-8\"\u003e\u003c/script\u003e\n\n\n\u003cp\u003eRebecca Spencer White used the Internet to find care for her son with a rare disease. She was able to connect with other parents and become an advocate for clinical trials.\u003c/p\u003e\n\u003cblockquote class=\"twitter-tweet\"\u003e\u003cp lang=\"en\" dir=\"ltr\"\u003eRebecca Spencer White was told \u0026quot;Don\u0026#39;t Google it!\u0026quot; when son was diagnosed with Niemann-Pick. But that\u0026#39;s the first thing she did. \u003ca href=\"https://twitter.com/hashtag/nihdigital?src=hash\u0026amp;ref_src=twsrc%5Etfw\"\u003e#nihdigital\u003c/a\u003e\u003c/p\u003e\u0026mdash; NIH (@NIH) \u003ca href=\"https://twitter.com/NIH/status/656108684095918080?ref_src=twsrc%5Etfw\"\u003eOctober 19, 2015\u003c/a\u003e\u003c/blockquote\u003e\n\u003cscript async src=\"https://platform.twitter.com/widgets.js\" charset=\"utf-8\"\u003e\u003c/script\u003e\n\n\n\u003ch2 id=\"reaching-patients-and-the-public-where-they-are-sharing-high-quality-evidence-based-information-with-the-public-on-social-media-blogs-and-mobile-apps\"\u003eReaching Patients and the Public Where They Are: Sharing High Quality, Evidence-Based Information With the Public on Social Media, Blogs and Mobile Apps\u003c/h2\u003e\n\u003cp\u003eErin Edgerton of Norvell Digital Edge Communications \u003ca href=\"https://storify.com/StuckonSW/nihdigital\"\u003eadvised government to emulate what brands do well\u003c/a\u003e. Focus on engagement first and awareness last.\u003c/p\u003e\n\u003cblockquote class=\"twitter-tweet\"\u003e\u003cp lang=\"en\" dir=\"ltr\"\u003e\u0026quot;MORE\u0026quot; [followers, likes] should be a low priority. Engagement should be first. \u003ca href=\"https://twitter.com/eedgerton?ref_src=twsrc%5Etfw\"\u003e@eedgerton\u003c/a\u003e \u003ca href=\"https://twitter.com/hashtag/NIHDigital?src=hash\u0026amp;ref_src=twsrc%5Etfw\"\u003e#NIHDigital\u003c/a\u003e\u003c/p\u003e\u0026mdash; NIH (@NIH) \u003ca href=\"https://twitter.com/NIH/status/656130789437022209?ref_src=twsrc%5Etfw\"\u003eOctober 19, 2015\u003c/a\u003e\u003c/blockquote\u003e\n\u003cscript async src=\"https://platform.twitter.com/widgets.js\" charset=\"utf-8\"\u003e\u003c/script\u003e\n\n\n\u003cp\u003eGive people tools, not toys. Robert Burchard of the Environmental Protection Agency and Erik Augustson, of the National Cancer Institute, showcased examples of robust tools. \u003ca href=\"http://www2.epa.gov/sunsafety/uv-index-0\"\u003eEPA’s UV Index\u003c/a\u003e and \u003ca href=\"http://smokefree.gov/\"\u003eSmokefree.gov\u003c/a\u003e support public health interventions.\u003c/p\u003e\n\u003ch2 id=\"the-health-professional-perspective-using-social-media-to-get-and-share-information-and-interact-with-other-professionals-and-patients\"\u003eThe Health Professional Perspective: Using Social Media To Get and Share Information and Interact With Other Professionals and Patients\u003c/h2\u003e\n\u003cp\u003e\u003ca href=\"https://storify.com/StuckonSW/nihdigital-summit-health-professional-perspective-\"\u003eHealth professionals have created evidence-based tools\u003c/a\u003e that can speed response to emergencies and support public health.\u003c/p\u003e\n\u003cblockquote class=\"twitter-tweet\"\u003e\u003cp lang=\"en\" dir=\"ltr\"\u003eBe first. Be right. Be credible. Good advice for gov communicators.  \u003ca href=\"https://twitter.com/hashtag/nihdigital?src=hash\u0026amp;ref_src=twsrc%5Etfw\"\u003e#nihdigital\u003c/a\u003e \u003ca href=\"https://twitter.com/hashtag/socialgov?src=hash\u0026amp;ref_src=twsrc%5Etfw\"\u003e#socialgov\u003c/a\u003e\u003c/p\u003e\u0026mdash; Irene Liu (@irene9000) \u003ca href=\"https://twitter.com/irene9000/status/656172037979926528?ref_src=twsrc%5Etfw\"\u003eOctober 19, 2015\u003c/a\u003e\u003c/blockquote\u003e\n\u003cscript async src=\"https://platform.twitter.com/widgets.js\" charset=\"utf-8\"\u003e\u003c/script\u003e\n\n\n\u003cp\u003eElizabeth Jarrett of the Office of the Assistant Secretary for Preparedness and Response (ASPR) HHS and Stacey Arnesen, of the National Library of Medicine at NIH, collaborated to create resources for \u003ca href=\"http://www.phe.gov/preparedness/Pages/default.aspx\"\u003eemergency preparedness, response and recovery\u003c/a\u003e. David Cooper described the \u003ca href=\"http://t2health.dcoe.mil/\"\u003eNational Center for Telehealth \u0026amp; Technology\u003c/a\u003e’s tools for behavioral health and stress management in the military. Corey Holland at the U.S. Department of Agriculture supports \u003ca href=\"https://www.supertracker.usda.gov/\"\u003eSuperTracker\u003c/a\u003e, a free community to track your food, physical activity, weight and goals.\u003c/p\u003e\n\u003ch2 id=\"the-scientists-perspective-using-digital-and-social-media-to-collaborate-share-ideas-and-communicate-research-to-the-public\"\u003eThe Scientist’s Perspective: Using Digital and Social Media To Collaborate, Share Ideas and Communicate Research to the Public\u003c/h2\u003e\n\u003cp\u003e\u003ca href=\"https://storify.com/StuckonSW/nihdigital-digital-summit\"\u003eResearchers are using digital tools\u003c/a\u003e in broad, creative ways. John Didion, of the National Human Genome Research Institute, advocates for adoption of \u003ca href=\"https://www.genome.gov/27561962\"\u003esmart pens\u003c/a\u003e to move the lab notebook from paper and pencil into the digital world. Margaret M. Farrell, of the National Cancer Institute, doesn’t limit her idea of colleagues to researchers in her office. She connects with a \u003ca href=\"https://researchtoreality.cancer.gov/\"\u003evirtual community of practice\u003c/a\u003e that includes more than 2,300 cancer control researchers and practitioners.\u003c/p\u003e\n\u003cp\u003eMegan Moreno, with \u003ca href=\"http://www.seattlechildrens.org/research/\"\u003eSeattle Children’s Research Institute\u003c/a\u003e, uses social media as a tool to investigate adolescent health and looks for associations between online and offline behavior.\u003c/p\u003e\n\u003cblockquote class=\"twitter-tweet\"\u003e\u003cp lang=\"en\" dir=\"ltr\"\u003eDr. Megan Moreno: need to integrate social media into existing successful behavioral interventions targeted towards adolescents \u003ca href=\"https://twitter.com/hashtag/NIHDigital?src=hash\u0026amp;ref_src=twsrc%5Etfw\"\u003e#NIHDigital\u003c/a\u003e\u003c/p\u003e\u0026mdash; National Institute of Mental Health (NIMH) (@NIMHgov) \u003ca href=\"https://twitter.com/NIMHgov/status/656190676569366528?ref_src=twsrc%5Etfw\"\u003eOctober 19, 2015\u003c/a\u003e\u003c/blockquote\u003e\n\u003cscript async src=\"https://platform.twitter.com/widgets.js\" charset=\"utf-8\"\u003e\u003c/script\u003e\n\n\n\u003cp\u003eIn case you missed it, you can \u003ca href=\"http://www.nih.gov/news/events/digital-summit.htm\"\u003ewatch the entire webcast and see the agenda\u003c/a\u003e. Check out #NIH Digital to read the tweets.\u003c/p\u003e\n"}
  ]
}